i was diagnosed on **** after optic neuritis age ***so did my aunt same year age ***we...

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The issue in GetHuman-realoma's own words
i was diagnosed on **** after optic neuritis age ***so did my aunt same year age ***we have marfan syndrome joints and body skeleton apart from height heart problems since childhood*our appetite is bad genetically we are extremely thin*i was diagnosed with keratoconus both eyes**** cornea popped out of my eye ****** never had relapses untill i started interferon **** got so many relapses mri results got so much worse*lost sp much weight untill today*then beta ferron then avonex*kept getting worse*stopped treatments ********* got atrophy but i admit i smoked pot for first time in my life but i stopped****** started my second treatment gilenya*im still fully healthy age ***havent done an mri yet*i feel my personality changed **% almost since the atrophy*it saddens me and my family can hardly recognised me i never stop talking laughing in wrong occations not socialy smart :'( either i laugh or get furios always skeptical ** how to rebuild my brain ?*havent had steroids since **** *in my country they give ****mg after each relapse is it fine or too much?

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Isu perkhidmatan pelanggan
Reported by GetHuman-realoma
Ogs 12, 2019 - 2 tahun yang lepas
Not resolved
Setakat ini dilihat oleh 16 pelanggan
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GetHuman-realoma mula menyelesaikan masalah ini
Ogs 12, 2019 1:40tengahari